Figuring things out this week...
9:21 pm CDT May 3, 2009
We met with the endocrine team this week and they are thinking that jasper might have Diabetes Insipidus (DI). That is why he was so dehydrated etc. We will hopefully get some testing done this week and figure out what is going on. Everyone is anxious to help Jasper overcome this new obstacle and see him go home!
He has been sleeping well, as we have a private room!! woohooo!!! he likes to look out the window at the floor and watch people, and all the nurses he has ever had seem to be popping by to say hello. His weight is slowly going up and his #'s are good. He was admitted with a potassium at 2.5, should be 3.5-5.5 and sodium was 165 should be about 135...
Working with genetics we have found that Jasper has some chromosomal abnormalities and they are giving the doctors ideas on how to help him. Childrens hospital has many great departments and they all work together and rely on each other for information.
Some people have asked about research programs and yes Childrens does partake in many. Their policies are to only involve children who can tolerate tests etc and only do tests in conjunction with tests being done. So if they need blood they will only stick the patient if that patient is getting blood anyway. That being said Jasper is NOT in any research project. All the testing we are doing is to help the doctors diagnose his many conditions.
*Diabetes Insipidus (DI) is a disorder in which there is an abnormal increase in urine output, fluid intake and often thirst. It causes symptoms such as urinary frequency, nocturia (frequent awakening at night to urinate) or enuresis (involuntary urination during sleep or "bedwetting"). Urine output is increased because it is not concentrated normally. Consequently, instead of being a yellow color, the urine is pale, colorless or watery in appearance and the measured concentration (osmolality or specific gravity) is low.
*Diabetes Insipidus is not the same as diabetes mellitus ("sugar" diabetes). Diabetes Insipidus resembles diabetes mellitus because the symptoms of both diseases are increased urination and thirst. However, in every other respect, including the causes and treatment of the disorders, the diseases are completely unrelated. Sometimes diabetes insipidus is referred to as "water" diabetes to distinguish it from the more common diabetes mellitus or "sugar" diabetes.
looking out the window
kristin and shirley visited!
the guys came in to watch the game
WOW cousin Jessica knitted this for Jasper! He loves it
POSTED BY JaspersMom