Trach sometime soon...
4:33 pm CST January 29, 2009
Well, they have decided to go ahead with the tracheostomy. I should rephrase that, as they didn't decide, it really is the only option to ensure Jasper has a stable airway. (A tracheostomy (trach) tube is a curved tube that is inserted into a tracheostomy stoma (the hole made in the neck and windpipe).
Why is he getting a tracheostomy? Jasper has a severe case of laryngomalacia (Laryngomalacia is a congenital abnormality of the larynx. It is a very common condition of infancy, in which the soft, immature cartilage of the upper larynx collapses inward during inhalation, causing airway obstruction)
The sleep study showed that he still has an obstruction and that he is losing 20% of each breath.
Jasper did have surgeries to try and correct his laryngomalacia, but we always knew the trach option was still on the table, as fixing his laryngomalacia right now might not work on such a small baby.
How long will he have this? Well we hope no more than 18 months. At that point we hope his airway is developed enough or that surgery will then be able to fix it.
We are also hoping that this time they will be able to combine his surgery for his feeding tube through his stomach as well. We will find out soon.
Was Jasper born early? Is that why he has these medical issues? Jasper wasn't born early, he was born at 40.5 weeks. These are congenital issues, some babies just happen to be born with them. UPDATE... we are on call tomorow for surgery Mon 2 Feb 09 fingers crossed also, Jasper received a wonderful present from the Trust running the NStar Children's Hospital Walk, a cute little lamb that plays soothing sounds such as an ocean, a stream, a whale, and a rain storm! He's been listening all weekend! He needs the rest as he has been super busy raising money for the walk! Great job Jasper!
Jasper is a virtual walker !
His new lamb friend!
He's putting on some weight, thank you for all your donations!
POSTED BY JaspersMom